Successful conference on clinical trials
An international conference organized by Health Action International (HAI) and Public Eye in Geneva in September 2016 provided a forum for renowned experts to exchange views on the ethical issues involved and the lack of transparency in clinical trials. Such questions are still too seldom discussed. The international interest was correspondingly high, with around 100 representatives from NGOs, authorities, universities, the medical profession, the media or the pharmaceutical industry in attendance.
Renowned international experts spoke at the conference on four priority themes:
- Ethics and the globalization of clinical trials
- Data transparency and access
- Evidence required before marketing authorization and fast-tracked procedures such as the “adaptive pathways” introduced in the EU
- Alternatives for biomedical research geared towards public health needs
The often inadequate and selective data released on clinical trials was intensely discussed. Full transparency on clinical trials should be “the rule and not the exception,” demanded Patrick Durisch, expressing his hope that the conference would act as a “wake-up call for more stringent regulations of clinical trials”.
Conference documents
Presentations
- Keynote Tom Jefferson, Centre for Evidence Based Medicine
- Keynote Teresa Alves, La Revue Prescrire
- Keynote Ruth Dreifuss, High-Level Panel on Access to Medicines
Globalisation of clinical trials and ethics
- Patrick Durisch, Public Eye
- Ayman Sabae, Egyptian Initiative for Personal Rights
- Samia Hurst, University of Geneva
- Françoise Jaquet, Swissmedic
Transparence and access to data
- Tom Jefferson, Centre for Evidence Based Medicine
- Jan Stadler, European Ombudsman
- Ancel.la Santos, HAI
- Ghassan Karam, WHO
Marketing authorisation & adaptive Pathways
- Hans Georg Eichler, EMA
- Beate Wieseler, IQWiG
- Joerg Schaaber, ISDB BUKO
- Monica Cavagna, BEUC
- Sopie le Pallec, Amalyste
Way forward to a needs-driven biomedical research
- Silvio Garattini, Mario Negri Institute
- Joel Lexchin, York University CAN
- Katy Athersuch, MSF Access Campaign
- Nathalie Strub, DNDi
Clinical Drug Trials: Conference Report 2016
Report Public Eye, Health Action International (2016)